In this conversation, Johanna and Bianca delve into the often-overlooked topic of chronic health conditions, particularly focusing on Ehlers-Danlos syndrome, POTS, and MCAS. Bianca shares her personal experiences with these conditions, highlighting the challenges of medical gaslighting and the importance of self-advocacy. They discuss the connection between neurodivergence and chronic illness, the psychological impact of living with these conditions, and the necessity of a multidisciplinary approach to care. The conversation emphasizes the importance of listening to one’s body, understanding the nuances of chronic illness, and the resources available for support.
To find out more information about Bianca and her practice visit: www.comfortpsychology.com.au or @comfortpsychology on instagram.
Your Chronic Illness Resources:
- The Ehlers-Danlos Society offers a range of information and support resources for EDS and related conditions, including medical guidelines and patient stories. You can explore more via The Ehlers Danlos Society
- The POTS Foundation provides valuable materials and community support specifically for those with POTS. Also find more POTS resources here.
- ME/CFS & Long-Covid
- MCAS
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Takeaways
- Chronic health conditions are often misunderstood and under-discussed.
- Medical gaslighting can severely impact patients’ mental health.
- Self-advocacy is crucial for those with chronic illnesses.
- Ehlers-Danlos syndrome and POTS are commonly misdiagnosed.
- Neurodivergent individuals often experience higher rates of chronic illness.
- A multidisciplinary approach is essential for effective management.
- Listening to your body is key to understanding your health.
- There are resources available for those seeking support.
- Trusting your body can help in managing chronic conditions.
- Education and awareness are vital in the healthcare system.
Keywords
chronic illness, Ehlers-Danlos syndrome, POTS, MCAS, neurodivergence, medical gaslighting, self-advocacy, multidisciplinary care, mental health, chronic pain
